Invisible until it is Visible
May 12th is Fibromyalgia Awareness Day- It is important to me because I have fibromyalgia.
I’d venture to say not everyone I know, knows I suffer with Fibro. And if they do it is because they have caught one of my rare awareness posts, or they have seen me on a rough day where I actually responded with my fibromyalgia is flaring up. Very rarely is it visible to others.
On a normal day my body aches similarly to how most people feel when the flu hits them, or maybe after the have had a crash of some kind, or after a long day of yard work or an extreme workout. This is my every day. There are other things that affect me too, fatigue, brain fog, sensitivity to extreme temperatures among other issues.
If I am exhausted just going to bed earlier or catching few more ZZZ’s won’t help. The bed hurts, the sheets hurt and my pillow doesn’t always hold my head just right, other days it can be a comfy place to be but if my fibro is acting up, it only hurts more.
People want to give a friendly hug, somedays this is fine, other days I know I just have to grin and bear it as it is the polite thing to do and frankly I don’t have the time or energy to explain my pain.
I’d like to remember everyone’s name or events in great detail, yet I know that my brain operates in a state of fog. My family says I take way too many pictures, I do love pictures but if I were honest I think I love them because I can go back and look at them to re-jog my memory if I was a bit too foggy that day.
Today, I am trying to make the invisible visible. I don’t have a shirt to wear telling people I have fibromyalgia. I don’t have an awareness sticker on my car. But I do have countless stories of me trying to live as “normal” person but I can’t. I have moments missed with my children because I just couldn’t any more. I have missed work because I had to stop and had nothing left to give. I have left my husband to do way more than his fair share of the household work. I have replied on my parents cover for me in ways I can’t count. I have felt very alone, because I haven’t always been able to do my part. I have felt alone, because it is hard to explain something that can’t be seen.
I want others just to know that not all medical needs are visible and be understanding.
I hope to encourage those who have Fibromyalgia and other invisible medical needs- You are not alone!
I want to encourage those who do life with someone who has one of the many invisible medical needs, It can be frustrating to not understand or know when or even how things end up this way but we are so thank you for your grace.
I want those who have helped me when I couldn’t to know I am thankful!